ROAD RACE GOALS
PARTICIPANTS
Bucket List
Eastcoast / Westcoast Road Trip!
*Organize a Batten Road Race
Go Geocaching
Hide and maintain a Geocache
4 Wheeling in Moab, Utah
Go to LegoLand
Ride a Camel
Go to Paris
Drive an amphibious vehicle
Buy a house in Colorado
Ride Codzilla in Boston Harbor
See the Flying W Christmas Show
Be in JNCL Cellcept Drug Trial
Visit Niagra Falls
Go Kayaking
Spend the weekend on a boat
See a N.E. Patriots Game
Go to Santa's Workshop (CO)
Milk a Cow
Go Camping
Go Jet Skiing
Visit top of Pikes Peak
Visit the Royal Gorge
Go on the Cog Railway
Go to Disney World
Visit an Alpaca Farm
Collect Fresh Eggs
Own a Home again
Cruise to Bermuda
Go to Canobie Lake Park
Go Fishing (Rachel)
Ride a Train
Go Lobstering
Go to Santa's Village (NH)
Go to Storyland
Feed Santa's Reindeers
Things that are in progress are in have a * before it. If you think you might be able to help us experience another item on the list, please email me directly. Thank you.
TeamRachel aka mrskatvon is both a website to gain public awareness of Juvenile Batten Disease (which affects my oldest daughter) as well as a journal to remember the events in our lives.
Rachel was diagnosed with Batten Disease in July 2009 and while we knew something was "not right" we had no idea that such a nightmarish disease existed. There are dozens of nasty, orphan disease which affect people both very young and old.
Aside from dealing with the changes of Batten Disease in my daughter, Rachel, I have tasked myself with making life memorable for all of my children to make sure that (at least) 3 of them grow up to be as well adjusted and happy as possible.
1035pm. What a fab day.
Posted by Kat in Health, John, Julie, Kat, Life, London, Rachel
Got SuperGlue off to school and spent the day with LittleMan and FireCracker, alternating between playing and working. I picked SuperGlue up a little early from school, well I always get there early so I can hang out for a bit and avoid having to stand in the long pick-up line (the babies always end up crying by the time I get to the front of the line).
After school I took the kids to Barnes and Nobles and the girls each got to buy a book and I got a Low Carb Cookbook for myself. Tonight the girls and I made beef and brocolli from scratch and ate dinner together with LittleMan (well, he watched). HotHubby has been with customers all day at is still not home at nearly 11pm at night (on Fort Carson, I think).
Put the kids to bed, exercised for 45 minutes, did the laundry and dishes, cleaned the house and am now sitting down with a glass of water to relish in my accomplishment. I’ve been having a hard time squeezing in exercise and balancing work with the kids, HotHubby and the house, but I really think I am starting to get there. Now I just have to get caught up on billing *groan*.
Sweet dreams everyone.