Whoooooooooooooooooo Doggie. That was a horrible night with the kids. I put Rach, Julie and London asleep with a movie in the same room last night, thinking it would be fun to have a camp out. All was fun and games until about 2am when Rachel woke up and “was scared” and turned on the *#*)$(#)*)($#*$ Television! London was awake and alternating between screaming and complaining (equally loud and regularly waking up Boston) until about 6am.
Seriously. Why don’t they like me? LOL
TeamRachel aka mrskatvon is both a website to gain public awareness of Juvenile Batten Disease (which affects my oldest daughter) as well as a journal to remember the events in our lives.
Rachel was diagnosed with Batten Disease in July 2009 and while we knew something was "not right" we had no idea that such a nightmarish disease existed. There are dozens of nasty, orphan disease which affect people both very young and old.
Aside from dealing with the changes of Batten Disease in my daughter, Rachel, I have tasked myself with making life memorable for all of my children to make sure that (at least) 3 of them grow up to be as well adjusted and happy as possible.
They love you!
They love you so much that they want to spend all night awake with you?
… ok, I tried.
Oh my god it was horrible. The next morning we were both ragged looking and tired.