ROAD RACE GOALS
PARTICIPANTS
Bucket List
Eastcoast / Westcoast Road Trip!
*Organize a Batten Road Race
Go Geocaching
Hide and maintain a Geocache
4 Wheeling in Moab, Utah
Go to LegoLand
Ride a Camel
Go to Paris
Drive an amphibious vehicle
Buy a house in Colorado
Ride Codzilla in Boston Harbor
See the Flying W Christmas Show
Be in JNCL Cellcept Drug Trial
Visit Niagra Falls
Go Kayaking
Spend the weekend on a boat
See a N.E. Patriots Game
Go to Santa's Workshop (CO)
Milk a Cow
Go Camping
Go Jet Skiing
Visit top of Pikes Peak
Visit the Royal Gorge
Go on the Cog Railway
Go to Disney World
Visit an Alpaca Farm
Collect Fresh Eggs
Own a Home again
Cruise to Bermuda
Go to Canobie Lake Park
Go Fishing (Rachel)
Ride a Train
Go Lobstering
Go to Santa's Village (NH)
Go to Storyland
Feed Santa's Reindeers
Things that are in progress are in have a * before it. If you think you might be able to help us experience another item on the list, please email me directly. Thank you.
TeamRachel aka mrskatvon is both a website to gain public awareness of Juvenile Batten Disease (which affects my oldest daughter) as well as a journal to remember the events in our lives.
Rachel was diagnosed with Batten Disease in July 2009 and while we knew something was "not right" we had no idea that such a nightmarish disease existed. There are dozens of nasty, orphan disease which affect people both very young and old.
Aside from dealing with the changes of Batten Disease in my daughter, Rachel, I have tasked myself with making life memorable for all of my children to make sure that (at least) 3 of them grow up to be as well adjusted and happy as possible.
Learning a lesson
Posted by Kat in John, Kat, Rachel
This morning I was a bit of a bitch to John and immediately after my bitchy episode, he left the house to go and buy cream cheese. While he was gone, I made him a note and put a cup of coffee on the piece of paper and left it on the porch. It said:
“I am the coffee of I’m sorry. Drink me and accept Kate’s apology.”
Then, I made him a bagel with our remaining cream cheese and put the plate on another piece of paper on the porch and that note said:
“I am the bagel of forgiveness. Eat me and forgive Kate.”
I told Rachel what I had done to upset John and what I was doing with the notes, the coffee and the bagel. I think it is a pretty good lesson to learn that your parents can sometimes be “not so nice” to each other but that it is *really* important to show each other that you’re sorry.
(My apology was accepted and I was forgiven for my bitchyness. ) : – )