It has been weeks since we have had a “day off” and it was amazing. It honestly felt like Christmas (no exaggeration). No school, no work, no customers, no shop. Just the 6 of us, all day long.
I feel so refreshed (I actually stayed in bed until 9!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!).
Today was an amazing day.
TeamRachel aka mrskatvon is both a website to gain public awareness of Juvenile Batten Disease (which affects my oldest daughter) as well as a journal to remember the events in our lives.
Rachel was diagnosed with Batten Disease in July 2009 and while we knew something was "not right" we had no idea that such a nightmarish disease existed. There are dozens of nasty, orphan disease which affect people both very young and old.
Aside from dealing with the changes of Batten Disease in my daughter, Rachel, I have tasked myself with making life memorable for all of my children to make sure that (at least) 3 of them grow up to be as well adjusted and happy as possible.
Sounds wonderful! I am sure it did wonders for you all!
That’s awesome! What a great way to spend the day!! I love when the kids are off for summer-even if I only get a bit of time before they go to their dads.