New Email
I have a new email and blog URL. The old stuff still works but if you’re updating your stuff, feel free to change me to:
email: mrs kat von at gmail dot com
blog: www dot mrs kat von dot com
About Me
TeamRachel aka mrskatvon is both a website to gain public awareness of Juvenile Batten Disease (which affects my oldest daughter) as well as a journal to remember the events in our lives.
Rachel was diagnosed with Batten Disease in July 2009 and while we knew something was "not right" we had no idea that such a nightmarish disease existed. There are dozens of nasty, orphan disease which affect people both very young and old.
Aside from dealing with the changes of Batten Disease in my daughter, Rachel, I have tasked myself with making life memorable for all of my children to make sure that (at least) 3 of them grow up to be as well adjusted and happy as possible.
We’ve gone full-circle now – over 8 years ago when I first “met” you online you were Kat!
I’d email ya, but I’m sure I wouldn’t get a reply.
the problem with knowing a webtech is that she’s always moving her shit around! LOL
What she said.
But you’ll always be Kate in my heart.
xoxo