Bucket List
Go to Disney World
Visit an Alpaca Farm
Collect Farm Fresh Eggs
* Learn to Snowboard (Kat)
* Learn How to Ice Skate
Go Fishing (Rachel)
Go Snow Tubing
Have a Pink House (Julie)
Visit top of Pikes Peak
Learn How to Drive (Rachel)
Go Lobstering (Rachel)
Things that are in progress are in have a * before it. If you think you might be able to help us experience another item on the list, please email me directly. Thank you.
My photos. Now you know me.
Support Batten Research
Please mail your check directly to the Batten Disease Support and Research Assocation. Please specify that you want the money to go to "Juvenile Batten Disease Research!"
Batten Disease Support and Research Association
166 Humphries Dr.
Reynoldsburg, OH 43068
www.bdsra.org
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- Melissa McCarthy said: You did what is best for your chid, as any good mo...
- Melissa McCarthy said: Oh honey, I know we don't "understand" but I do un...
- The Maven said: Thanks for the surgery update. I think you know wh...
- Eileen/Granny said: Couldnt sleep, guess it was the Mountain Dew but R...
- The Maven said: I hope surgery went as well as expected today. I'm...
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alpacas
batten disease
Birthday
blind
blind child
blindness
Bucket List
cardiologist
chickens
childhood
childrens hospital
chocolate orange
Christmas
cookies
Doctor
drama
eyes
girl scouts
grief
guilt
happiness
holly
humility
Julie
key lime pie
kids
Life
life is good
Maine
Rachel
retina
santa
skating
swimming
Thanksgiving
traditions
tweets
twitter
Valentines




THat’s th elegacy of a mother wound for you. Holy Hell.
They really did evolve into a tour de force, didn’t they?