Where I’m at
This week I have found out that you can have a “perfect” eye exam but have some severe vision problems. Who knew?
Rach has been having problems with her vision and a lot of problems with “tracking” so I did a bit of research and found the COVD and have made an appointment for Rachel in Boston with a Developmental Optometrist on December 2. I’m really eager to find out of there is anything going on with her eyes that a standard eye exam would not have picked up on. That would make a lot of sense but lots of things make sense that have had no medical connection.
You can read more about this here: http://childrensvision.com/
TeamRachel aka mrskatvon is both a website to gain public awareness of Juvenile Batten Disease (which affects my oldest daughter) as well as a journal to remember the events in our lives.
Rachel was diagnosed with Batten Disease in July 2009 and while we knew something was "not right" we had no idea that such a nightmarish disease existed. There are dozens of nasty, orphan disease which affect people both very young and old.
Aside from dealing with the changes of Batten Disease in my daughter, Rachel, I have tasked myself with making life memorable for all of my children to make sure that (at least) 3 of them grow up to be as well adjusted and happy as possible.
I’ll be praying that if there is something the doctor picks up on it right away. Give Rach a big hug from Miss Jacquie!