WED
3 hours at the ER later and London’s leg is NOT broken. He still won’t walk on it, poor little guy.
Today I should hear about the EEG and talk to Rachel’s caseworker from the Commission of the Blind.
My oldest brother, his wife and 3 daughters are coming out for a week and all of my family is having a BBQ at my place on Sunday. 3 brothers, me, John, 3 brother’s chicks, my parents and all of our kids. I hope it isn’t too much for Rach. I think I will have her be my helper to keep her focused on specific tasks, rather than get lost and totally overwhelmed.
Tomorrow afternoon, Rachel’s two teachers from last year are coming to take Rachel for a couple of hours. I have not told her yet. She is going to be so excited.
(This post was written one-handed with a very cuddly 2yo Boston in my other arm and lap. He might be totally obnoxious but he is still a baby inside. I love him!)
NEW THEME. Trying to get rid of the commenting problem. Could those that have been having problems leaving a comment please try it out now?
TeamRachel aka mrskatvon is both a website to gain public awareness of Juvenile Batten Disease (which affects my oldest daughter) as well as a journal to remember the events in our lives.
Rachel was diagnosed with Batten Disease in July 2009 and while we knew something was "not right" we had no idea that such a nightmarish disease existed. There are dozens of nasty, orphan disease which affect people both very young and old.
Aside from dealing with the changes of Batten Disease in my daughter, Rachel, I have tasked myself with making life memorable for all of my children to make sure that (at least) 3 of them grow up to be as well adjusted and happy as possible.
Test comments.
Testing, testing…
Love you!!
I am happy that no bones were broken! Poor little guy! Woww, the whole family is coming to Hull…watch out!!
I love this background! LOVE it!
We are looking forward to seeing you and the rest of the gang, just not looking forward to the drive… See you in a few days!