http://www.teamrachel.com/2009/07/21/tuesday-4/ - Raising money to cure Juvenile Batten Disease Fri, 03 Feb 2012 02:21:47 +0000 hourly 1 http://wordpress.org/?v=3.3.1 http://www.teamrachel.com/2009/07/21/tuesday-4/#comment-16609 Pam lamb Fri, 24 Jul 2009 04:06:28 +0000 http://www.mrskatvon.com/?p=1147#comment-16609 our son, Patrick, suffered a severe brain trauma almost 2 years ago due to a rare form of the herpes virus, herpes 7. it attacked his brain and caused swelling that resulted him being a blind quadraplegic on a feeding tube. one day he was a healthy little boy and the next it was a new boy we brought home after 3 months living in the hospital. he regained his vision and is off the feeding tube but he had to have a baclofen pump installed to control spasms and he cannot walk,talk, or sit up without assistance. I do not know what his future holds but my greatest malady is now my greatest blessing. My prayers are with you and your family during this time...I wish I had some words of wisdom but everyday is a challenge and hopefully your strength (and you are stronger than you know although it doesn't feel like it, does it?) will help... our son, Patrick, suffered a severe brain trauma almost 2 years ago due to a rare form of the herpes virus, herpes 7. it attacked his brain and caused swelling that resulted him being a blind quadraplegic on a feeding tube. one day he was a healthy little boy and the next it was a new boy we brought home after 3 months living in the hospital. he regained his vision and is off the feeding tube but he had to have a baclofen pump installed to control spasms and he cannot walk,talk, or sit up without assistance. I do not know what his future holds but my greatest malady is now my greatest blessing. My prayers are with you and your family during this time…I wish I had some words of wisdom but everyday is a challenge and hopefully your strength (and you are stronger than you know although it doesn’t feel like it, does it?) will help…

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