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Home » Boston » Lots of pictures
Jul26 8

Lots of pictures

Posted by Kat in Boston, John, Julie, Kat, Life, London, Rachel

Julie (5) in the swimming pool at a birthday party

Julie (5) in the swimming pool at a birthday party

Rachel enjoying the pool at Tony's party

Rachel (9) enjoying the pool at Tony's party

John at Tony's 4th birthday party

John (too old to admit) at Tony's 4th birthday party

London with a sandy face

London (nearly 4) with a sandy face

Boston (nearly 3) pointing at an airplane

Boston (nearly 3) pointing

Rachel listening to Mary

Rachel listening to Mary

Boston (nearly 3) pointing at an airplane

Boston (nearly 3) pointing at an airplane

Rachel (9) with Trevor

Rachel (9) with Trevor

More walking Trevor

More walking Trevor

Rach is thirsty after walking so much

Rach is thirsty after walking so much

Julie (5) the Duck Whisperer

Julie (5) the Duck Whisperer

Julie (5) with a face you can't say no to

Julie (5) with a face you can't say no to

Julie, Rachel, Boston and London

Julie, Rachel, Boston and London

Juliebean, Rachey, Boss man and Jack

Juliebean, Rachey, Boss man and Jack

This is Rachel, 3 weeks ago at her Granny's house

This is Rachel, 3 weeks ago at her Granny's house

8 Comments

  1. Kathy | July 27, 2009 at 6:44 am

    Beautiful kiddos Kate!!

  2. xkranda | July 27, 2009 at 8:28 am

    you know your kids are gorgeous…but wow! You’ve gotta watch out for Julie as she gets older. That girl is BEAUTIFUL!!! Whoa!

  3. Katie Mae | July 27, 2009 at 12:45 pm

    Beautiful pictures Kate, thank you for sharing. I know you said praying for a miracle won’t work, but that won’t stop me from praying for strength for you (((hug)))

  4. ~L~ | July 27, 2009 at 5:59 pm

    They are so beautiful! I LOVE SUMMER PHOTOS!

  5. LelĂȘ | July 28, 2009 at 8:45 am

    You bake some pretty gorgeous kiddos, Kate!! And I agree that Summer pics are the best! :adore :adore

  6. Shawna | July 29, 2009 at 11:06 pm

    Sooo grown up! I can’t believe how big they are getting. Beautiful!<3

  7. Bill Blais | August 1, 2009 at 4:08 am

    Great pictures! The kids look wonderful, everyone looks happy, and what a perfect-looking summer day! I’m glad you were able to have this time.

    (So you folks had sun, huh? What’s that like?)

  8. lulu | August 2, 2009 at 10:00 pm

    Love those pictures!

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Bucket List

Eastcoast / Westcoast Road Trip!
*Organize a Batten Road Race
Go Geocaching
Hide and maintain a Geocache
4 Wheeling in Moab, Utah
Go to LegoLand
Ride a Camel
Go to Paris
Drive an amphibious vehicle
Buy a house in Colorado
Ride Codzilla in Boston Harbor
See the Flying W Christmas Show
Be in JNCL Cellcept Drug Trial
Visit Niagra Falls
Go Kayaking
Spend the weekend on a boat
See a N.E. Patriots Game
Go to Santa's Workshop (CO)
Milk a Cow
Go Camping
Go Jet Skiing
Visit top of Pikes Peak
Visit the Royal Gorge
Go on the Cog Railway
Go to Disney World
Visit an Alpaca Farm
Collect Fresh Eggs
Own a Home again
Cruise to Bermuda
Go to Canobie Lake Park
Go Fishing (Rachel)
Ride a Train
Go Lobstering
Go to Santa's Village (NH)
Go to Storyland
Feed Santa's Reindeers

Things that are in progress are in have a * before it. If you think you might be able to help us experience another item on the list, please email me directly. Thank you.

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batten disease BDSRA Birthday blind blind child blindness Bucket List cellcept childrens hospital Christmas Colorado cookies Death drama eyes florida Flying W geocaching girl scouts grand mal grand mal seizure grief holly humility jncl Julie key lime pie kids lamictal Life life is good London Rachel retina risperdal road trip santa Sponsors swimming team rachel Terminal Illness Thanksgiving traditions tweets twitter

About Me

TeamRachel aka mrskatvon is both a website to gain public awareness of Juvenile Batten Disease (which affects my oldest daughter) as well as a journal to remember the events in our lives. Rachel was diagnosed with Batten Disease in July 2009 and while we knew something was "not right" we had no idea that such a nightmarish disease existed. There are dozens of nasty, orphan disease which affect people both very young and old. Aside from dealing with the changes of Batten Disease in my daughter, Rachel, I have tasked myself with making life memorable for all of my children to make sure that (at least) 3 of them grow up to be as well adjusted and happy as possible.

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