http://www.mrskatvon.com/2009/07/28/posting-information/ - The personal blog of Kat von Tungeln Tue, 31 Aug 2010 16:05:22 +0000 hourly 1 http://wordpress.org/?v=3.0.1 http://www.mrskatvon.com/2009/07/28/posting-information/comment-page-1/#comment-16665 hayley Sun, 02 Aug 2009 20:24:11 +0000 http://www.mrskatvon.com/?p=1197#comment-16665 Hiya i just wanted to post you a message to wish you all the best with Rachel i know kinda how you feel as my ex brother in law has this. He is about 20 now and leads a remarkable life he rides the streets where he lives on his bike (single and tandem) his mum's never moved so he know's the layout like the back of his hand he skateboards too. He is in college at the minute learning to be a bike mechanic i have actually seen him fix his bike and it was amazing scared me to death though watching a blind man saw parts off his bike but he did it better than i could. He's doing amazingly well for his age they told his parents that he wouldnt' live much past his 6th birthday and he's now about 20 his family swear he's doing so well because he doesn't know what's wrong with him as they've never told him the extent of his condition he just thinks he's blind. I wish you and your family all the best and i'll continue to read your blog... Hiya i just wanted to post you a message to wish you all the best with Rachel i know kinda how you feel as my ex brother in law has this. He is about 20 now and leads a remarkable life he rides the streets where he lives on his bike (single and tandem) his mum’s never moved so he know’s the layout like the back of his hand he skateboards too. He is in college at the minute learning to be a bike mechanic i have actually seen him fix his bike and it was amazing scared me to death though watching a blind man saw parts off his bike but he did it better than i could. He’s doing amazingly well for his age they told his parents that he wouldnt’ live much past his 6th birthday and he’s now about 20 his family swear he’s doing so well because he doesn’t know what’s wrong with him as they’ve never told him the extent of his condition he just thinks he’s blind. I wish you and your family all the best and i’ll continue to read your blog…

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