Bucket List
Go to Disney World
Visit an Alpaca Farm
Collect Farm Fresh Eggs
* Learn to Snowboard (Kat)
* Learn How to Ice Skate
Go Fishing (Rachel)
Go Snow Tubing
Have a Pink House (Julie)
Visit top of Pikes Peak
Learn How to Drive (Rachel)
Go Lobstering (Rachel)
Things that are in progress are in have a * before it. If you think you might be able to help us experience another item on the list, please email me directly. Thank you.
My photos. Now you know me.
Support Batten Research
Please mail your check directly to the Batten Disease Support and Research Assocation. Please specify that you want the money to go to "Juvenile Batten Disease Research!"
Batten Disease Support and Research Association
166 Humphries Dr.
Reynoldsburg, OH 43068
www.bdsra.org
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- Eileen/Granny said: Yummy. Thank you for all your help Kate.Mum XX...
- Tami said: This is Becca's favorite dessert to make. We eat ...
- Melissa McCarthy said: You did what is best for your chid, as any good mo...
- Melissa McCarthy said: Oh honey, I know we don't "understand" but I do un...
- The Maven said: Thanks for the surgery update. I think you know wh...
- Eileen/Granny said: Couldnt sleep, guess it was the Mountain Dew but R...
alpacas
batten disease
Birthday
blind
blind child
blindness
Bucket List
cardiologist
chickens
childhood
childrens hospital
chocolate orange
Christmas
cookies
Doctor
drama
eyes
girl scouts
grief
guilt
happiness
holly
humility
Julie
key lime pie
kids
Life
life is good
Maine
Rachel
retina
santa
skating
swimming
Thanksgiving
traditions
tweets
twitter
Valentines




hugs, hugs, hugs
yes it is
She doesn’t deserve this
you, John, Julie, London, and Boston don’t deserve this
wish you could actually wake up from this nightmare
I am so sorry
I wish we all could make it better for you and your family.
*hugs* I’m so sorry Kat. *hugs*
It really is. ((((hug))))
Hugs sweetie.
*hugs*. I have no doubt that it is truly a nightmare
I absolutely believe you. I am so grateful you know Susan.