October 2001
I wrote this to Rachel and the paper with board backing (twas the cover of a sracp book) I wrote it on is falling apart. I’m typing it out here to remember it. In October 2001 I was a single Mom, divorcing from my first husband and had not yet met my John. 
Dearest Rachel,
I completed this book for you on October 1, 2001. I want you to k now that I love you more than anyone or anything in this world. You are a brilliant little girl who will thrive and succeed at anything you choose to do. Just don’t grow up too quickly, I’m enjoying every moment of your childhood.
Love, hugs & kisses,
Your Mum XOXO
TeamRachel aka mrskatvon is both a website to gain public awareness of Juvenile Batten Disease (which affects my oldest daughter) as well as a journal to remember the events in our lives.
Rachel was diagnosed with Batten Disease in July 2009 and while we knew something was "not right" we had no idea that such a nightmarish disease existed. There are dozens of nasty, orphan disease which affect people both very young and old.
Aside from dealing with the changes of Batten Disease in my daughter, Rachel, I have tasked myself with making life memorable for all of my children to make sure that (at least) 3 of them grow up to be as well adjusted and happy as possible.
Kate, I think of Rachel and you daily. Your 10/2001 letter to Rachel exudes so much love and anticipation for the future she deserves so very much.
It was a pleasure to meet with you and the children. They are beautiful. Barbara
You have always been there for her. Even as I type this you are at childrens working to improve what you can.
(((((hug))))