The weekend
I took a few minutes out of the morning and brought Rachel and Holly to Sunshine Pet and bought Holly some food and a new harness. Holly was so excited to see Ceil and was trying so hard to get into the doggie area. Such a sweet dog.
Ran a few errands and took the kids to the park and hit up the grocery store on the way home. I made grilled cheese sandwiches for lunch and bought John the stuff to make salsa this afternoon and I’m making a new pasta with broccoli and chicken dish. Hope its good. Looking to take it easy today.
Enjoy the weekend!
TeamRachel aka mrskatvon is both a website to gain public awareness of Juvenile Batten Disease (which affects my oldest daughter) as well as a journal to remember the events in our lives.
Rachel was diagnosed with Batten Disease in July 2009 and while we knew something was "not right" we had no idea that such a nightmarish disease existed. There are dozens of nasty, orphan disease which affect people both very young and old.
Aside from dealing with the changes of Batten Disease in my daughter, Rachel, I have tasked myself with making life memorable for all of my children to make sure that (at least) 3 of them grow up to be as well adjusted and happy as possible.
Hey Kate,
I just was reading your blog (hadn’t been in for a long time) and I was shocked to read about Rachel. I’m so sorry the little sweetie is going thru this. I m sorry you as parents have to deal with this.
Many prayers and hugs for your family.