My friend for life

// October 14th, 2009 // Batten

She better start reading my blog, damn it! This is Heather (Mom of Tyler who is 8 with JNCL) that I met during our trip to the University of Rochester Batten Disease Research Center. She is awesome, I love her and I will be a pimple on her nose for the rest of our lives!!!
heather

Me and Heather in NY.

One Response to “My friend for life”

Melissa McCarthy says:

10/14/2009 at 10:46 pm

Aww I’m glad you two were able to meet and you now have someone you can talk to who has or is going through the same things. xoxox

Bucket List

~~Go to Disney World~~
~~Visit an Alpaca Farm~~
~~Collect Farm Fresh Eggs~~
* Learn to Snowboard (Kat)
* Learn How to Ice Skate
Go Fishing (Rachel)
Go Snow Tubing
Have a Pink House (Julie)
Visit top of Pikes Peak
Learn How to Drive (Rachel)
Go Lobstering (Rachel)

Things that are in progress are in have a * before it. If you think you might be able to help us experience another item on the list, please email me directly. Thank you.

My photos. Now you know me.

Support Batten Research

Please mail your check directly to the Batten Disease Support and Research Assocation. Please specify that you want the money to go to "Juvenile Batten Disease Research!"

Batten Disease Support and Research Association
166 Humphries Dr.
Reynoldsburg, OH 43068
www.bdsra.org

Tami said: This is Becca's favorite dessert to make. We eat ...
Melissa McCarthy said: You did what is best for your chid, as any good mo...
Melissa McCarthy said: Oh honey, I know we don't "understand" but I do un...
The Maven said: Thanks for the surgery update. I think you know wh...
Eileen/Granny said: Couldnt sleep, guess it was the Mountain Dew but R...
The Maven said: I hope surgery went as well as expected today. I'm...

As told by Kat