Can’t sleep
// November 7th, 2009 // Batten
Can’t get over this and what is in Rachel’s future.
Can’t get over how unfair this is for her.
Can’t get over how hard it must be for her.
Can barely breathe.
I just can’t believe this is happening.
Welcome! My name is Kat and I'm the mother of 4. Rachel is living with a universally terminal illness called Juvenile Batten Disease. Rachel, Julie, London, Boston and I are doing everything we can to suck the marrow out of life and looking to raise money for Batten Disease Research. Watch us make the most of the time we have.
// November 7th, 2009 // Batten
Can’t get over this and what is in Rachel’s future.
Can’t get over how unfair this is for her.
Can’t get over how hard it must be for her.
Can barely breathe.
I just can’t believe this is happening.
I am so so sorry hon! I wish I could wave a wand and make it all better for all of you. You are always in my thoughts. xoxoxoxox
Just wanted to respond that I’m here and I have no idea what to say but had to respond.
Are you having/considering counselling for yourself? I don’t think anyone could accept or come to terms with a diagnosis like this but maybe it could help somewhere, on some level?
(((hugs)))
You are very right! It’s really not fair.
I have nothing to offer but ((((HUGS))))
She’s not my child and I cannot get over the unfairness of it so I cannot begin to imagine how you feel. ((hug))
I am with you John & Rachel & the little ones all the way.
I will help you with Rachel any time you ask. I cant take away the pain but I will give you all the love & support that I can. I love you. Mum XX
Thank you for listening. It means a lot to me.