Comments on: The stages of grief http://www.mrskatvon.com/2009/11/09/the-stages-of-grief/ Living with Juvenile Batten Disease Thu, 11 Mar 2010 04:59:51 +0000 http://wordpress.org/?v=2.9.2 hourly 1 By: lulu http://www.mrskatvon.com/2009/11/09/the-stages-of-grief/comment-page-1/#comment-17889 lulu Fri, 13 Nov 2009 00:39:59 +0000 http://www.mrskatvon.com/?p=1418#comment-17889 Rosie who? Rosie who?

]]> By: JulieC http://www.mrskatvon.com/2009/11/09/the-stages-of-grief/comment-page-1/#comment-17873 JulieC Wed, 11 Nov 2009 03:42:09 +0000 http://www.mrskatvon.com/?p=1418#comment-17873 Kat, just letting you know I'm stil following along and wishing you strength. You are an amazing mother to your Julie (and Rachel and Boston and London), if for no other reason, because your head hasn't simply exploded or started spinning wildly around your neck. You're still doing fun things with the kids, you are making arrangements and finding resources rapidly as things change, and still manage to write coherently even though you probably aren't feeling too coherent. You rock. Own it. Kat, just letting you know I’m stil following along and wishing you strength. You are an amazing mother to your Julie (and Rachel and Boston and London), if for no other reason, because your head hasn’t simply exploded or started spinning wildly around your neck. You’re still doing fun things with the kids, you are making arrangements and finding resources rapidly as things change, and still manage to write coherently even though you probably aren’t feeling too coherent. You rock. Own it.

]]> By: Kat http://www.mrskatvon.com/2009/11/09/the-stages-of-grief/comment-page-1/#comment-17870 Kat Tue, 10 Nov 2009 15:58:16 +0000 http://www.mrskatvon.com/?p=1418#comment-17870 Janelle, I tossed the second comment. :) Thank you for coming and writing it out (twice). Janelle, I tossed the second comment. :) Thank you for coming and writing it out (twice).

]]> By: Janelle http://www.mrskatvon.com/2009/11/09/the-stages-of-grief/comment-page-1/#comment-17869 Janelle Tue, 10 Nov 2009 15:53:26 +0000 http://www.mrskatvon.com/?p=1418#comment-17869 please disregard my second almost identical comment (think it's awaiting moderation atm) The cat jumped on the keyboard and deleted it as it was sending so I didn't think it went through....and so retyped it. :) please disregard my second almost identical comment (think it’s awaiting moderation atm) The cat jumped on the keyboard and deleted it as it was sending so I didn’t think it went through….and so retyped it. :)

]]> By: Janelle http://www.mrskatvon.com/2009/11/09/the-stages-of-grief/comment-page-1/#comment-17867 Janelle Tue, 10 Nov 2009 15:38:08 +0000 http://www.mrskatvon.com/?p=1418#comment-17867 I find that I bounce around a fair bit between the stages as well. But the one that I will not give in to is depression. When she was well, Tatyanna sparkled. She radiated this magnetic energy that would draw people in and hold them there. Even now, she makes you feel good just by being around her and has been known to have her entire class giggling hysterically over something that only she thought was amusing. For me, the best way to honour her amazing spirit is to focus positively on what we have at this moment and to keep fighting. Some days are definately harder then others to find the good. As for acceptance, I don't really know how you get to the point where you accept the beast that is Batten. I've accepted that this is our situation, that this is our battle....but I will never stop fighting for my little girl. I find that I bounce around a fair bit between the stages as well. But the one that I will not give in to is depression. When she was well, Tatyanna sparkled. She radiated this magnetic energy that would draw people in and hold them there. Even now, she makes you feel good just by being around her and has been known to have her entire class giggling hysterically over something that only she thought was amusing. For me, the best way to honour her amazing spirit is to focus positively on what we have at this moment and to keep fighting. Some days are definately harder then others to find the good. As for acceptance, I don’t really know how you get to the point where you accept the beast that is Batten. I’ve accepted that this is our situation, that this is our battle….but I will never stop fighting for my little girl.

]]> By: Jess http://www.mrskatvon.com/2009/11/09/the-stages-of-grief/comment-page-1/#comment-17863 Jess Tue, 10 Nov 2009 03:56:38 +0000 http://www.mrskatvon.com/?p=1418#comment-17863 In my classes (I'm going to school to be a nurse) we had to look at the stages of grief in both my psychology and my nurse assistant class. It's very normal to bounce around and they say some people never make it to the final stage. We have done the denial and isolation and anger. They call them stages but I think they need to re-word that because everyone that goes through them... doesn't go 1/2/3/4... ya know! Sometimes they start with 3! We are concentrating on the good days! Currently, he might not see much... BUT he hears and can show happiness and we are determined to make as much of his days that way as possible! In my classes (I’m going to school to be a nurse) we had to look at the stages of grief in both my psychology and my nurse assistant class. It’s very normal to bounce around and they say some people never make it to the final stage. We have done the denial and isolation and anger. They call them stages but I think they need to re-word that because everyone that goes through them… doesn’t go 1/2/3/4… ya know! Sometimes they start with 3! We are concentrating on the good days! Currently, he might not see much… BUT he hears and can show happiness and we are determined to make as much of his days that way as possible!

]]> By: Susan http://www.mrskatvon.com/2009/11/09/the-stages-of-grief/comment-page-1/#comment-17862 Susan Tue, 10 Nov 2009 03:13:09 +0000 http://www.mrskatvon.com/?p=1418#comment-17862 bouncing around is definitely normal I thinkt I pushed a lot of the grief away when Nathan was still alive in order to give him the best possible life in the time he had left. I am still bouncing around, over 2 years later. I haven't progressed, just bouncing. Right now I am just as sad as ever, if not more than any other time - who knows why. bouncing around is definitely normal

I thinkt I pushed a lot of the grief away when Nathan was still alive in order to give him the best possible life in the time he had left.

I am still bouncing around, over 2 years later. I haven’t progressed, just bouncing. Right now I am just as sad as ever, if not more than any other time – who knows why.

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