The weekend
First of all, lets pay due respect to trash day that was on thursday. We love our trash day! 
Friday night Julie had Daisy Scouts and in my alone time between dropping her off and picking her up I swung by the pizza place near our house and preordered dinner. John and Rachel walked to the pizza place and the boys and I ran and grabbed Julie then all met to have a nice dinner. I like that pizza place because its affordable and they are becoming to know us as regulars. People who know us are far more forgiving than perfect strangers. The pizza place is about to open up a small breakfast bar on the other side of their building space that isn’t being used right now. I look forward to trying it out.
Saturday (today) I took Julie out for a pastry at the bakery in our town and we brought home treats. While we were there another Mom and her girls (one of which is in kindergarten with Julie) was doing the same thing we were and we ended up agreeing to meet at the park near our house. We were at the park for nearly 2 hours! They are going to sleep well tonight.
Once John closes the shop I am dragging the 5 of them to find a real Christmas tree that we’re going to put out on the porch and decorate the hell out of it.
Tonight Lulu is coming over for dinner and to see the kiddos. I’m hoping she’ll be able to take Rachel and Holly on a short walk while I cleanup.
On Sunday John is smoking ribs and Uncle Clive (and maybe my parents?) are coming over. Definitely going to bake some cookies, too.
So if you wonder how I am dealing withthis disease….. read my answer above. We’re doing things that normal families do, regardless of her outbursts and personal challenges. Lightning strikes in all sorts of ways. Just try and enjoy every day without worrying when lightning will strike you. Don’t waste your time on this earth worrying about what might happen because there isn’t a damn thing you can do to prevent random, horrible things from happening.
Enjoy your weekend. Do something wonderful. Think of Rachel .
You have a choice in life. You can choose to have a good day regardless of your challenges or you can let your challenges choose for you.
Choose wisely. (Post a comment if you agree. Tell me what YOU did this weekend to make it wonderful!)
TeamRachel aka mrskatvon is both a website to gain public awareness of Juvenile Batten Disease (which affects my oldest daughter) as well as a journal to remember the events in our lives.
Rachel was diagnosed with Batten Disease in July 2009 and while we knew something was "not right" we had no idea that such a nightmarish disease existed. There are dozens of nasty, orphan disease which affect people both very young and old.
Aside from dealing with the changes of Batten Disease in my daughter, Rachel, I have tasked myself with making life memorable for all of my children to make sure that (at least) 3 of them grow up to be as well adjusted and happy as possible.
Good job Kate. Rachel & i had a great time on our sleepover.She loves to help me prepare dinner & then eat it. Had a clean up in the garage & am preparing for 16 for Thanksgiving. 1 pm lunch….OK
Hugs Mum xx
What a wonderful post, Kat! I hope you are able to enjoy many more weekends like this one.
Our weekend so far? We allowed the 2 eldest to stay up and watch tv way later than we usually allow them to and we had popcorn and ate ice-cream from the tub and laughed a heck of a lot. It was lovely to just enjoy them.
Tonight C asked to stay up again and we’re about to make hot toast and watch some trashy tv. He’s had behaviour problems lately and we moved – again, and I’m sure we’ve both been less than kind to one another so this is real bonding time.
Tomorrow, a walk along the seafront, some sit on amusement rides and hopefully more laughs and sloppy kisses to boot.
I think of you guys, and especially Rachel, a lot. :adore
Today we are taking my 5 kiddos to see Planet 51 fo Briana’s B-day she is the big 13 today and tomorrow we are going roller skating with a few of her friends. Long busy weekend but like all of them they are all worth it. Sounds like your going to have a great weekend and maybe well be doing breakfast together when all the kiddos are at school some day I don’t have to be ther till 10 now yippie! Love you and remember you are the BEST MOM EVER!!!
This is such an uplifting post today. I missed your Thursday trash day post though.. LOL
Not much going on this weekend. But me and ds went to my mom’s to clean her house. We always enjoy that, then we always go out to lunch. I go every two weeks and sometimes I go alone.
Oddly enough, we all enjoy these Saturdays.
Sunday is just church and subway for lunch–no big deal.
Enjoy the rest of your weekend!!!!
((HUGS))
Kate, sorry about not taking Rachel and Holly out….Next time!!!
I volunteered for the Denver Feed A family event in —of course– Denver! I was a team captain for the Ambassador volunteers and they did a great job making sure 6,000 plus people were cared for and received a box of food for Thanksgiving dinner.
Sam’s Club and Walmart donated all of the food. I was very impressed by their generosity. It was a long and tiring day but a complete and total blast! It felt good to get out of my world and give to others.
I love you guys! xxoo
Oh annnd W00T W00T for trash day!
