Sunday
Boston is playing with his toys, Rachel is laying on the couch listening to Toy Story and talking with Boston. Julie and London are in the other room playing “Batman Legos” together. We have a pretty intense storm rolling through and lots of wind blowing around the house. John is sleeping in our bed upstairs and my brother (Adrian) is a floor above him sleeping in our guest bed.
We went to BJs last night and got piles of fruit and veggies which I can’t wait to dig into today. My brother promised to make us breakfast this morning and I’m trying to balance waking him up vs. letting him sleep. Kids will be starving soon. Maybe one of the kiddos will have to go up one flight and make a lot of noise at the bottom of the stairs leading up to the floor he is sleeping on.
I’ve been spending a lot of time thinking about how to handle childcare this summer and what to do. I definitely have several trips planned with this summer, several of them will take us to amusement parks. Sometimes I wish I were a child again so these heavy things wouldn’t be hanging over my head.
Bills. Parent/Teacher Conferences. IEPs. Marriage. Familial Responsibility. Playdates. Volunteering. Childcare. Fundraisers. Boatloads of Laundry. Dishes. Pets. I’d like to escape from reality for just one day and enjoy the freedom of not always having to put on a “happy face”. Trust me, I know that isn’t going to happen but it is certainly nice to daydream….
TeamRachel aka mrskatvon is both a website to gain public awareness of Juvenile Batten Disease (which affects my oldest daughter) as well as a journal to remember the events in our lives.
Rachel was diagnosed with Batten Disease in July 2009 and while we knew something was "not right" we had no idea that such a nightmarish disease existed. There are dozens of nasty, orphan disease which affect people both very young and old.
Aside from dealing with the changes of Batten Disease in my daughter, Rachel, I have tasked myself with making life memorable for all of my children to make sure that (at least) 3 of them grow up to be as well adjusted and happy as possible.
If you ever need an extra hand with any of the kiddos or numerous pets or house cleaning or anything, cal me. I’ll be happy to help ease some of this stress off of your shoulders. You don’t have to do it alone. I speak for everyone when I say we’re here if you need us.
Well when you get to town, you can have a 13 year old and a 16 year old to help with the childcare here. I would also be more then willing to help you out. You know we are here for you.
Take your niece up on her offer, don’t try to do it all yourself hon!
XOXO Love and miss you bunches!
That is quite a big list Kat. I hope there is a little time in there when the happy face that you put on becomes real.