Small Fundraiser
Rachel REALLY wants to have a lemonade stand to raise money for the BDSRA. We are going to put out a lemonade stand on the 4th of July at our house to hopefully catch the beachgoers who park near our house and walk to the beach. If you live nearby and can come, please do! I set-up a paypal account today with my personal email that you can GIFT money through to avoid fees. If you are far away or unable to attend and you would like to participate my paypal email address is mrskatvon@gmail.com – here are the details of her stand.
Rachel’s Lemonade Stand
35 N Street
Hull, MA 02045
Date: Sunday, July 4th
Time: 9am – 12noon
Here is the facebook event page: http://www.facebook.com/#!/event.php?eid=112552612125564
We’ll be selling cups of pink lemonade or bottles of water for $1.00 each. All (and I mean ALL) monies received will be donated directly to the BDSRA in the name of Juvenile Batten Disease Research.
Please email me with any questions. mrskatvon@gmail.com
TeamRachel aka mrskatvon is both a website to gain public awareness of Juvenile Batten Disease (which affects my oldest daughter) as well as a journal to remember the events in our lives.
Rachel was diagnosed with Batten Disease in July 2009 and while we knew something was "not right" we had no idea that such a nightmarish disease existed. There are dozens of nasty, orphan disease which affect people both very young and old.
Aside from dealing with the changes of Batten Disease in my daughter, Rachel, I have tasked myself with making life memorable for all of my children to make sure that (at least) 3 of them grow up to be as well adjusted and happy as possible.
Fantastic. See you there. We bought extra cups for Rachel. Hugs Mum XX