Wowzer
We had a very busy day today. I took the girls and my nieces shopping and for lunch then used our remaining Go Kart tickets.
When we got home I took the kids swimming for about 30 minutes and as we were getting out of the pool, my nieces and nephews came over for some swimming. My kiddos were thrilled!
Tonight we took Rachel to the wholesale store to get food and drinks for our July 4th BBQ. She was OFF THE WALL. Major dementia. The absolute worst “bout” I have seen in her yet. She wasn’t agitated, which was good, but she was a HANDFUL.
Tomorrow we will all have a good day and the dementia will be gone. Tomorrow will be a great day. Tomorrow will be fun.
It has to be.
TeamRachel aka mrskatvon is both a website to gain public awareness of Juvenile Batten Disease (which affects my oldest daughter) as well as a journal to remember the events in our lives.
Rachel was diagnosed with Batten Disease in July 2009 and while we knew something was "not right" we had no idea that such a nightmarish disease existed. There are dozens of nasty, orphan disease which affect people both very young and old.
Aside from dealing with the changes of Batten Disease in my daughter, Rachel, I have tasked myself with making life memorable for all of my children to make sure that (at least) 3 of them grow up to be as well adjusted and happy as possible.
Today is a great day. $300 by 10 am . She is on a roll.May Kate & Rachel find a cure for the dreadful disease. We need to do this now.
What a mixed day…
I’m glad you had some fun time but sorry that the day took a downward turn at the end.
Tomorrow is another day, Kat. Your courage is amazing. (((hugs)))