We’ve completed the first day of our trip, driving from Hull (MA) to Danbury (CT). The kids and I spent the entire day with my brother and his family. We went to Dunkies for breakfast, went to Stew Leonards (yay) and had the most delicious pizza for dinner. We even got to pet cows! We’re off to Hershey, PA tomorrow.
TeamRachel aka mrskatvon is both a website to gain public awareness of Juvenile Batten Disease (which affects my oldest daughter) as well as a journal to remember the events in our lives.
Rachel was diagnosed with Batten Disease in July 2009 and while we knew something was "not right" we had no idea that such a nightmarish disease existed. There are dozens of nasty, orphan disease which affect people both very young and old.
Aside from dealing with the changes of Batten Disease in my daughter, Rachel, I have tasked myself with making life memorable for all of my children to make sure that (at least) 3 of them grow up to be as well adjusted and happy as possible.
Great day for the kids. So glad they loved Stew Leonard’s with Chris & the family. Here’s to a good time in Hershey PA. Hugs Mum XX
Good on you Kate,we are watchiing with great interest.We have three grandchildren with us today and feel that is busy but fun and you have four with you love P and Rx(rellies in England)
SWEET. See ya in a few…
Also we’d like to da a camping night if you are all up for it…
Tent, fire, smores etc…
See you in a few.