The Drive: We’re staying in “Kansas City” for the next few days so we’re not really driving.
We hung out at my brother’s house, went to Target in the morning and swimming in the afternoon. At night we went to the nearby ice cream shop called “Here’s Your Scoop” with my family, Adrian’s family and Sarah’s BFF (who I really like).
PICTURES!
TeamRachel aka mrskatvon is both a website to gain public awareness of Juvenile Batten Disease (which affects my oldest daughter) as well as a journal to remember the events in our lives.
Rachel was diagnosed with Batten Disease in July 2009 and while we knew something was "not right" we had no idea that such a nightmarish disease existed. There are dozens of nasty, orphan disease which affect people both very young and old.
Aside from dealing with the changes of Batten Disease in my daughter, Rachel, I have tasked myself with making life memorable for all of my children to make sure that (at least) 3 of them grow up to be as well adjusted and happy as possible.
Glad all is going great. Enjoy your trip making memories.Will be thinking of you all as you head on to Colorado. Have fun.Loved the photos & updates. Well done to you. you are a fantastic Mum & the children reflect that. Keep up the positive thinking as you drive across the USA. Hope Rachel keeps on singing her songs. Hugs Mum XX
Looks like a great time! Cannot wait to see pics of milking cows!
(((HUGS)))