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Home » Batten » Day 8 – Colorado or Bust
Aug09 5

Day 8 – Colorado or Bust

Posted by Kat in Batten, Bucket List, Memories, Vacation

The Drive: Hays, KS to Colorado Springs, CO to Pueblo, CO to Colorado Springs, CO.

We drove down to Pueblo to have a BBQ with great friends then headed to our hotel in Colorado Springs late last night. London freaked out at night when a regular lightning storm rolled through, he was so upset! Our hotel is pretty nice and we’re staying here until Wednesday then will head to the campgrounds for a couple of nights.

We had a little time in between getting to Colorado Springs (where we used to live) and having to leave for the bbq in Pueblo so I drove down memory lane. I was taken back at how emotional the ride was… driving past restaurants, parks and other places we used to go when Rachel was much more healthy/normal/sighted than she is now. Thinking back to then makes the losses more obvious and as you can imagine I was pretty upset for a short while.

We also stopped at our old house and dropped in on our neighbor, Jacquie! We haven’t seen her in a few years when she came out to visit us!!! It has definitely been too long since I’ve seen my friends out here.

Total Miles: 399

Jamie, Melissa and the BBQ

Jamie, Melissa and the BBQ

Jamie, Melissa and the BBQ

Jamie, Melissa and the BBQ

Jamie, Melissa and the BBQ

Jamie, Melissa and the BBQ

Jamie, Melissa and the BBQ

Jamie, Melissa and the BBQ

Jamie, Melissa and the BBQ

Jamie, Melissa and the BBQ

Jamie, Melissa and the BBQ

Jamie, Melissa and the BBQ

5 Comments

  1. John | August 9, 2010 at 2:15 pm

    It is so cool to see everyone again.

  2. Melissa | August 9, 2010 at 2:37 pm

    Oh uggh…what a horrible picture of me, tkae it down, take it down. LOL It’s so great to have you back, even if for just a short while.

    John wish you were able to make it down as well.

  3. Eileen/Granny | August 9, 2010 at 3:38 pm

    Enjoy making new memories whilst visiting the past.Make every moment count even resting time. Hugs to you all. Well done Kate
    Rachel Julie London & Boston. Love Granny XX

  4. Lisa (From MV) | August 9, 2010 at 7:16 pm

    Love the pictures, looks like everyone is having a blast! I truly admire your energy and zest for life. Rachel looks happy, you’re giving her and your other kids such great experiences and memories. Rock on, Kat! :)

  5. Tami | August 9, 2010 at 9:57 pm

    What a wonderful vacation for all of you! So happy for you!

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ROAD RACE GOALS

Goal: $10,000
Raised: $24,755.44

$249% of goal!
(Percentage as of 11/11/11)

PARTICIPANTS

435 Participants

Bucket List

Eastcoast / Westcoast Road Trip!
*Organize a Batten Road Race
Go Geocaching
Hide and maintain a Geocache
4 Wheeling in Moab, Utah
Go to LegoLand
Ride a Camel
Go to Paris
Drive an amphibious vehicle
Buy a house in Colorado
Ride Codzilla in Boston Harbor
See the Flying W Christmas Show
Be in JNCL Cellcept Drug Trial
Visit Niagra Falls
Go Kayaking
Spend the weekend on a boat
See a N.E. Patriots Game
Go to Santa's Workshop (CO)
Milk a Cow
Go Camping
Go Jet Skiing
Visit top of Pikes Peak
Visit the Royal Gorge
Go on the Cog Railway
Go to Disney World
Visit an Alpaca Farm
Collect Fresh Eggs
Own a Home again
Cruise to Bermuda
Go to Canobie Lake Park
Go Fishing (Rachel)
Ride a Train
Go Lobstering
Go to Santa's Village (NH)
Go to Storyland
Feed Santa's Reindeers

Things that are in progress are in have a * before it. If you think you might be able to help us experience another item on the list, please email me directly. Thank you.

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About Me

TeamRachel aka mrskatvon is both a website to gain public awareness of Juvenile Batten Disease (which affects my oldest daughter) as well as a journal to remember the events in our lives. Rachel was diagnosed with Batten Disease in July 2009 and while we knew something was "not right" we had no idea that such a nightmarish disease existed. There are dozens of nasty, orphan disease which affect people both very young and old. Aside from dealing with the changes of Batten Disease in my daughter, Rachel, I have tasked myself with making life memorable for all of my children to make sure that (at least) 3 of them grow up to be as well adjusted and happy as possible.

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