I registered the domain name many months ago and have toyed around with it for too long. I’ll be launching the website on September 1st and donating all of the proceeds to Batten Disease Research in hopes of finding a cure for my beautiful girl, Rachel.
Here is the website: http://www.battencandles.com/
Here is the facebook page, please become a fan and invite your friends: http://www.facebook.com/pages/Batten-Candles/109108849146358
I guess I should add this to my bucket list. 
TeamRachel aka mrskatvon is both a website to gain public awareness of Juvenile Batten Disease (which affects my oldest daughter) as well as a journal to remember the events in our lives.
Rachel was diagnosed with Batten Disease in July 2009 and while we knew something was "not right" we had no idea that such a nightmarish disease existed. There are dozens of nasty, orphan disease which affect people both very young and old.
Aside from dealing with the changes of Batten Disease in my daughter, Rachel, I have tasked myself with making life memorable for all of my children to make sure that (at least) 3 of them grow up to be as well adjusted and happy as possible.
I can’t wait to get some candles- you are wonderful!!!
Remember, I’m here to help make candles.
Can’t wait to see your updated blog, even though this one is already perfect :0) The jam looks deeeelicous!!!