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	<title>As told by Kat &#187; Fitness</title>
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	<link>http://www.mrskatvon.com</link>
	<description>Living with Juvenile Batten Disease</description>
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		<title>Rainy Tuesday</title>
		<link>http://www.mrskatvon.com/2009/06/09/rainy-tuesday/</link>
		<comments>http://www.mrskatvon.com/2009/06/09/rainy-tuesday/#comments</comments>
		<pubDate>Tue, 09 Jun 2009 15:57:51 +0000</pubDate>
		<dc:creator>Kat</dc:creator>
				<category><![CDATA[Boston]]></category>
		<category><![CDATA[Fitness]]></category>
		<category><![CDATA[Health]]></category>
		<category><![CDATA[John]]></category>
		<category><![CDATA[Julie]]></category>
		<category><![CDATA[Kat]]></category>
		<category><![CDATA[Life]]></category>
		<category><![CDATA[London]]></category>
		<category><![CDATA[Rachel]]></category>
		<category><![CDATA[Work]]></category>

		<guid isPermaLink="false">http://www.mrskatvon.com/?p=1087</guid>
		<description><![CDATA[I figure I will make this one a public entry.  For those who don&#8217;t know, we have (within the last month or two) found out that Rachel has a very significant vision problem that is actively degenerating her retina and her optic nerve is very affected.  We have done lots of blood tests to find [...]]]></description>
			<content:encoded><![CDATA[<p>I figure I will make this one a public entry.  For those who don&#8217;t know, we have (within the last month or two) found out that Rachel has a very significant vision problem that is actively degenerating her retina and her optic nerve is very affected.  We have done lots of blood tests to find out the source but ultimately she needs to have an ERG test completed for a definitive answer.  The ERG was scheduled for a few weeks ago but it was too much for her and we could barely even &#8220;drop her&#8221; (with the different kinds of eye drops required) so we are awaiting a miracle (LOL) in the schedule of Dr Ann Fulton at Children&#8217;s Hospital who can do an ERG under general anesthesia.   We have upgraded her IEP for next year and as a part of that, Rachel is (RIGHT NOW!!!) undergoing a functional vision assessment at school by a Teacher of the Visually Impaired.   The vision appears to be a symptom of something much bigger and we are working with a geneticist who is looking for specific stuff (including some chromosome deletions) that might be responsible for a great deal of things.  All of this takes time.</p>
<p>Julie and Rachel will be out of school in about 2 weeks and my Juliebean is GRADUATING PRESCHOOL next week in preparation for Kindergarten!  The girls both have their school concerts on Thursday so expect to see some pictures up here at the end of the week!  Rachel is now 9 and Juliebean turned 5 in March.</p>
<p>The boys are doing well and are the best of friends.  London is into playing Indiana Jones Legos and in the sandbox with Julie and Boston is a professional laptop destroyer and amateur escape artist.  They are healthy and obnoxious and eating me into the poor house.  Just as it should be. <img src='http://www.mrskatvon.com/wp-includes/images/smilies/icon_smile.gif' alt=':)' class='wp-smiley' /> </p>
<p>I have lots of doctor appointments lined up for Rachel and hopefully this summer will bring us some answers so we can know how to best apply our efforts.  The girls won&#8217;t be doing summer school (at my request) so I will be trying to think of some fun summer ideas.  We did join the zoo last week so I will certainly want to get my money&#8217;s worth (LOL).</p>
<p>Most importantly I look forward to watch them just be kids.</p>
<p>John had nose and throat surgery on Thursday so I&#8217;ve been playing nursemaid with the help of the kids.  He is on the mend now but I am sure is drooling at the thought of steak right now even though he is nowhere near ready for that yet.  I&#8217;m sure it will be another week before he is better.  The nose is healing faster than the throat (he had his uvula out and his nose fixed).  No more snoring!!</p>
<p>Drop me a comment if you&#8217;re out there&#8230; <img src='http://www.mrskatvon.com/wp-includes/images/smilies/icon_smile.gif' alt=':)' class='wp-smiley' /> </p>
]]></content:encoded>
			<wfw:commentRss>http://www.mrskatvon.com/2009/06/09/rainy-tuesday/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>Today was a hard day</title>
		<link>http://www.mrskatvon.com/2008/07/12/today-was-a-hard-day/</link>
		<comments>http://www.mrskatvon.com/2008/07/12/today-was-a-hard-day/#comments</comments>
		<pubDate>Sun, 13 Jul 2008 01:25:49 +0000</pubDate>
		<dc:creator>Kat</dc:creator>
				<category><![CDATA[Fitness]]></category>
		<category><![CDATA[John]]></category>
		<category><![CDATA[Kat]]></category>
		<category><![CDATA[Life]]></category>
		<category><![CDATA[London]]></category>

		<guid isPermaLink="false">http://www.mrskatvon.com/?p=825</guid>
		<description><![CDATA[It started off pretty good.  I did a 10 mile bike ride to my parents and back.  They had the girls for a sleepover so I stopped in and hung out with the girls for a bit and then my father and I rode back.  It was nice to get out of the house, exercise [...]]]></description>
			<content:encoded><![CDATA[<p>It started off pretty good.  I did a 10 mile bike ride to my parents and back.  They had the girls for a sleepover so I stopped in and hung out with the girls for a bit and then my father and I rode back.  It was nice to get out of the house, exercise a bit and be free of children for a little while.  Shortly after I got home to the boys, John left for the shop and the girls were delivered off and the insanity began.</p>
<p>Suffice it to say I was very happy when bedtime rolled around tonight.  I look forward to a blissful day of John&#8217;s help with the children.  I&#8217;ll try and take some picture but I&#8217;ll have to find a new way to get them onto  the internet as a certain 2yo dumped a class of water on my laptop today and fried the motherboard.  *cry*  London is very lucky he is so darn cute.  <img src='http://www.mrskatvon.com/wp-includes/images/smilies/icon_smile.gif' alt=':)' class='wp-smiley' /> </p>
]]></content:encoded>
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		<slash:comments>1</slash:comments>
		</item>
		<item>
		<title>55.7lbs gone!</title>
		<link>http://www.mrskatvon.com/2008/06/26/557lbs-gone/</link>
		<comments>http://www.mrskatvon.com/2008/06/26/557lbs-gone/#comments</comments>
		<pubDate>Thu, 26 Jun 2008 11:38:53 +0000</pubDate>
		<dc:creator>Kat</dc:creator>
				<category><![CDATA[Fitness]]></category>
		<category><![CDATA[Kat]]></category>

		<guid isPermaLink="false">http://www.mrskatvon.com/?p=814</guid>
		<description><![CDATA[I figured since it had been a while since I had updated about this that y&#8217;all would think I was &#8220;off the wagon.&#8221;  I did have a *heavenly* cheat day last week but that hasn&#8217;t stopped me.   
I feel great!
My BMI has gone from 37.3 to  28.8.
]]></description>
			<content:encoded><![CDATA[<p>I figured since it had been a while since I had updated about this that y&#8217;all would think I was &#8220;off the wagon.&#8221;  I did have a *heavenly* cheat day last week but that hasn&#8217;t stopped me.  <img src='http://www.mrskatvon.com/wp-includes/images/smilies/icon_smile.gif' alt=':)' class='wp-smiley' /> </p>
<p>I feel great!</p>
<p>My BMI has gone from 37.3 to  28.8.</p>
]]></content:encoded>
			<wfw:commentRss>http://www.mrskatvon.com/2008/06/26/557lbs-gone/feed/</wfw:commentRss>
		<slash:comments>7</slash:comments>
		</item>
		<item>
		<title>39.7lbs!</title>
		<link>http://www.mrskatvon.com/2008/05/31/397lbs/</link>
		<comments>http://www.mrskatvon.com/2008/05/31/397lbs/#comments</comments>
		<pubDate>Sat, 31 May 2008 20:29:13 +0000</pubDate>
		<dc:creator>Kat</dc:creator>
				<category><![CDATA[Fitness]]></category>
		<category><![CDATA[Kat]]></category>

		<guid isPermaLink="false">http://www.katevon.com/?p=808</guid>
		<description><![CDATA[I feel really, really good.  I think I am going to celebrate tonight by dragging myself and my friend to a bowling alley.  I haven&#8217;t been bowling in many, many years.
]]></description>
			<content:encoded><![CDATA[<p>I feel really, really good.  I think I am going to celebrate tonight by dragging myself and my friend to a bowling alley.  I haven&#8217;t been bowling in many, many years.</p>
]]></content:encoded>
			<wfw:commentRss>http://www.mrskatvon.com/2008/05/31/397lbs/feed/</wfw:commentRss>
		<slash:comments>3</slash:comments>
		</item>
		<item>
		<title>36.7lbs gone!!!!!!!</title>
		<link>http://www.mrskatvon.com/2008/05/28/367lbs-gone/</link>
		<comments>http://www.mrskatvon.com/2008/05/28/367lbs-gone/#comments</comments>
		<pubDate>Wed, 28 May 2008 11:38:45 +0000</pubDate>
		<dc:creator>Kat</dc:creator>
				<category><![CDATA[Fitness]]></category>
		<category><![CDATA[Kat]]></category>

		<guid isPermaLink="false">http://www.katevon.com/?p=807</guid>
		<description><![CDATA[I can&#8217;t believe how well this diet combo is working!  
]]></description>
			<content:encoded><![CDATA[<p>I can&#8217;t believe how well this diet combo is working!  </p>
]]></content:encoded>
			<wfw:commentRss>http://www.mrskatvon.com/2008/05/28/367lbs-gone/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>5 weeks and 32.9lbs</title>
		<link>http://www.mrskatvon.com/2008/05/24/5-weeks-and-329lbs/</link>
		<comments>http://www.mrskatvon.com/2008/05/24/5-weeks-and-329lbs/#comments</comments>
		<pubDate>Sat, 24 May 2008 12:40:29 +0000</pubDate>
		<dc:creator>Kat</dc:creator>
				<category><![CDATA[Fitness]]></category>
		<category><![CDATA[John]]></category>
		<category><![CDATA[Kat]]></category>

		<guid isPermaLink="false">http://www.katevon.com/?p=802</guid>
		<description><![CDATA[Today is officially the 5 week mark.  I freakin&#8217; *LOVE* Yoga!!!  My wonderful husband is supposed to be taking some 30lb pictures of me but I&#8217;ve barely seen him all week (which is a good thing work wise).   
]]></description>
			<content:encoded><![CDATA[<p>Today is officially the 5 week mark.  I freakin&#8217; *LOVE* Yoga!!!  My wonderful husband is supposed to be taking some 30lb pictures of me but I&#8217;ve barely seen him all week (which is a good thing work wise).  <img src='http://www.mrskatvon.com/wp-includes/images/smilies/icon_smile.gif' alt=':)' class='wp-smiley' /> </p>
]]></content:encoded>
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		<slash:comments>1</slash:comments>
		</item>
		<item>
		<title>I hit the 30lb mark this morning</title>
		<link>http://www.mrskatvon.com/2008/05/21/i-hit-the-30lb-mark-this-morning/</link>
		<comments>http://www.mrskatvon.com/2008/05/21/i-hit-the-30lb-mark-this-morning/#comments</comments>
		<pubDate>Wed, 21 May 2008 10:57:20 +0000</pubDate>
		<dc:creator>Kat</dc:creator>
				<category><![CDATA[Fitness]]></category>
		<category><![CDATA[Kat]]></category>

		<guid isPermaLink="false">http://www.katevon.com/?p=801</guid>
		<description><![CDATA[For a total weight loss of 30.1 pounds.  My restrictive diet and yoga everyday is certainly paying off.
Yay me!  I&#8217;m not so much going for a numeric weight loss as I want more energy and to be able to move better.  Chasing after 4 kiddos takes a limber and energetic Momma.  [...]]]></description>
			<content:encoded><![CDATA[<p>For a total weight loss of 30.1 pounds.  My restrictive diet and yoga everyday is certainly paying off.</p>
<p>Yay me!  I&#8217;m not so much going for a numeric weight loss as I want more energy and to be able to move better.  Chasing after 4 kiddos takes a limber and energetic Momma.  <img src='http://www.mrskatvon.com/wp-includes/images/smilies/icon_smile.gif' alt=':)' class='wp-smiley' /> </p>
]]></content:encoded>
			<wfw:commentRss>http://www.mrskatvon.com/2008/05/21/i-hit-the-30lb-mark-this-morning/feed/</wfw:commentRss>
		<slash:comments>3</slash:comments>
		</item>
		<item>
		<title>25.7 pounds GONE!</title>
		<link>http://www.mrskatvon.com/2008/05/14/257-pounds-gone/</link>
		<comments>http://www.mrskatvon.com/2008/05/14/257-pounds-gone/#comments</comments>
		<pubDate>Wed, 14 May 2008 11:20:20 +0000</pubDate>
		<dc:creator>Kat</dc:creator>
				<category><![CDATA[Fitness]]></category>

		<guid isPermaLink="false">http://www.katevon.com/?p=791</guid>
		<description><![CDATA[I&#8217;m not sure why my body decided to let go of almost 2 pounds since yesterday but I figure it must be leftover water weight from last week (if you get my drift, ladies?).   
I&#8217;ll take it!!
I&#8217;ll take another picture when I hit the 30lb mark.
]]></description>
			<content:encoded><![CDATA[<p>I&#8217;m not sure why my body decided to let go of almost 2 pounds since yesterday but I figure it must be leftover water weight from last week (if you get my drift, ladies?).  <img src='http://www.mrskatvon.com/wp-includes/images/smilies/icon_biggrin.gif' alt=':D' class='wp-smiley' /> </p>
<p>I&#8217;ll take it!!</p>
<p>I&#8217;ll take another picture when I hit the 30lb mark.</p>
]]></content:encoded>
			<wfw:commentRss>http://www.mrskatvon.com/2008/05/14/257-pounds-gone/feed/</wfw:commentRss>
		<slash:comments>1</slash:comments>
		</item>
		<item>
		<title>20 pounds down picture</title>
		<link>http://www.mrskatvon.com/2008/05/04/20-pounds-down-picture/</link>
		<comments>http://www.mrskatvon.com/2008/05/04/20-pounds-down-picture/#comments</comments>
		<pubDate>Sun, 04 May 2008 12:00:51 +0000</pubDate>
		<dc:creator>Kat</dc:creator>
				<category><![CDATA[Fitness]]></category>
		<category><![CDATA[Kat]]></category>

		<guid isPermaLink="false">http://www.katevon.com/?p=786</guid>
		<description><![CDATA[  

]]></description>
			<content:encoded><![CDATA[<p> <img src='http://www.mrskatvon.com/wp-includes/images/smilies/icon_smile.gif' alt=':)' class='wp-smiley' /> </p>
<p><img src='http://www.katevon.com/wp-content/uploads/2008/05/225.jpg' alt='225.jpg' /></p>
]]></content:encoded>
			<wfw:commentRss>http://www.mrskatvon.com/2008/05/04/20-pounds-down-picture/feed/</wfw:commentRss>
		<slash:comments>4</slash:comments>
		</item>
		<item>
		<title>20.1 Pounds Lost</title>
		<link>http://www.mrskatvon.com/2008/05/04/201-pounds-lost/</link>
		<comments>http://www.mrskatvon.com/2008/05/04/201-pounds-lost/#comments</comments>
		<pubDate>Sun, 04 May 2008 11:33:05 +0000</pubDate>
		<dc:creator>Kat</dc:creator>
				<category><![CDATA[Fitness]]></category>
		<category><![CDATA[Kat]]></category>

		<guid isPermaLink="false">http://www.katevon.com/?p=784</guid>
		<description><![CDATA[I have definitely found that eating less is a major adjustment but I can see now that it has been my intake that has caused my extra weight, not my physical activity level.  I am still doing yoga every single day and my body has improved dramatically in its ability to stretch and hold [...]]]></description>
			<content:encoded><![CDATA[<p>I have definitely found that eating less is a major adjustment but I can see now that it has been my intake that has caused my extra weight, not my physical activity level.  I am still doing yoga every single day and my body has improved dramatically in its ability to stretch and hold difficult poses &#8211; I love YOGA!</p>
<p>I&#8217;ll post a picture later today!!</p>
]]></content:encoded>
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		<slash:comments>0</slash:comments>
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