I’ve started to add a few videos into my youtube account (mrskatvon) and take them out of my old, workish one.
Read MoreI need to read the manual on my camera, my goodness! Sorry for the crappy quality.
Feel free to subscribe to my youtube, I have more videos to add.
http://www.youtube.com/mrskatvon
Read MoreHow did that movie get past me? It was awesome! Have you seen it? Here is a DMB song with clips from Children of Men…
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TeamRachel aka mrskatvon is both a website to gain public awareness of Juvenile Batten Disease (which affects my oldest daughter) as well as a journal to remember the events in our lives.
Rachel was diagnosed with Batten Disease in July 2009 and while we knew something was "not right" we had no idea that such a nightmarish disease existed. There are dozens of nasty, orphan disease which affect people both very young and old.
Aside from dealing with the changes of Batten Disease in my daughter, Rachel, I have tasked myself with making life memorable for all of my children to make sure that (at least) 3 of them grow up to be as well adjusted and happy as possible.
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