Welcome! My name is Kat and I'm the mother of 4. Rachel is living with a universally terminal illness called Juvenile Batten Disease. Rachel, Julie, London, Boston and I are doing everything we can to suck the marrow out of life and looking to raise money for Batten Disease Research. Watch us make the most of the time we have.
// February 5th, 2010 // 2 Comments » // Doctor, Julie, Kat, Life
Today I am taking Julie to Children’s Hospital to have a recently discovered heart murmur checked out by a cardiologist.
Julie has spent the last week telling everyone she knows and then immediately following it up with “don’t worry, I’m not worried.”
She is such a good girl. I’m looking forward to having a few hours alone with her. Will update later.
// March 19th, 2009 // No Comments » // Julie
My beautiful little girl is turning 5 in a matter of days and we are having her birthday at Par Tee in the next town over at an indoor miniature golf place.
On her actual birthday we are going to take all 4 children Build A Bear. This upcoming outing has bought me a lot of leverage with Rachel with her persistence with being late every morning. Today will be day 4 of being on-time and that is a total miracle!!
Copyright © 2010 As told by Kat. All rights reserved.
