is coming up with a new daily …
is coming up with a new daily schedule to try and balance life and kids a little better. (And I get a little more “me” time out of the …
Read Moreis sitting on the front porch …
is sitting on the front porch enjoying a chilly spring breeze.
Read Morereally really wants to feel we…
really really wants to feel well. It’s 2am and my little bed buddy (London) is NOT snoring!!!!
Read Morehas a very nasty virus and rea…
has a very nasty virus and reallllllllly wants her husband to close the shop early.
Read More
TeamRachel aka mrskatvon is both a website to gain public awareness of Juvenile Batten Disease (which affects my oldest daughter) as well as a journal to remember the events in our lives.
Rachel was diagnosed with Batten Disease in July 2009 and while we knew something was "not right" we had no idea that such a nightmarish disease existed. There are dozens of nasty, orphan disease which affect people both very young and old.
Aside from dealing with the changes of Batten Disease in my daughter, Rachel, I have tasked myself with making life memorable for all of my children to make sure that (at least) 3 of them grow up to be as well adjusted and happy as possible.
Recent Comments